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Show 150 I am replaying those words again and again in my mind, wondering if I had heard correctly. Did he really say he would call the company for the protocol? He is examining my stiffened body as I had anticipated but I am now eager to help him understand the complexities and complications of this disease. He is attentive as I explain the startle, show him the odd patches on my skin where the pigmentation has disappeared, tell him about some recent marginal thyroid tests. He is now telling me about the theorized micro-chemistry of stiff-man syndrome, explaining in more detail than I had ever before understood how Baclofen and benzodiazapines work in their differing ways to help at least somewhat alleviate the symptoms. He is readying to leave my room and pauses at the door. "I'll try to get ahold of the company this afternoon," he is saying, pulling on the handle. He looks over at me and smiles as he exits. I am looking at the same wallpaper, the same TV, and the same breakfast food, now sitting cold on the table next to my bed. I see the same window with the same scenery. But there is some-thing new here now. It is hope. The door is opening once again and I am thinking I must share this good news with Lisa, my nurse, and I look forward to her entry. |