Title | Creator | Date | Description | Relation Is Part Of | ||
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1 | Impacting the Care of Children with Rare Disease through the Medical Home Portal | Jensen, Susan | 2015 | Introduction: There are over 7,000 known rare diseases, with over half having a childhood onset. Although rare diseases are singularly uncommon, collectively 6-10% of the population is affected. The sheer number of rare diseases and infrequent prevalence create a difficult challenge for health care ... | Graduate Nursing Project, Doctor of Nursing Practice, DNP |