| Description |
Invisible disabilities-conditions that are not immediately apparent to others-often leave individuals navigating systems without recognition, understanding, or adequate support. This qualitative narrative inquiry explores the lived experiences of young adults (ages 18-34) with invisible disabilities in the Western United States, with particular attention to how they experience stigma, navigate societal systems, and demonstrate resilience across educational, medical, and social settings. Data was collected and analyzed thematically using triangulation methods: in-depth interviews, field notes, and artwork. Using Yosso's (2005) Community Cultural Wealth (CCW) framework, this study analyzes participant narratives to highlight the various forms of capital-aspirational, navigational, social, familial, resistant, and linguistic-that individuals draw upon to adapt, resist, and advocate within systems often shaped by ableism. Five central themes emerged: Navigating Medical Systems, Stigma, and Mental Health; Strategic Disclosure and Managing Societal Perceptions; Adjusting Life Goals and Finding New Aspirations; Building Support Systems, Advocacy, and Self-Protection; and Reconstructing Identity Beyond Disability. While CCW offered a valuable strengths-based perspective, this study also examines its limitations in addressing the unrecognized or undervalued assets of those with invisible conditions. These findings underscore the need for more inclusive institutional practices and inform future research, policy, and culturally responsive support for this underrepresented community. |
