Identifier |
20170404_nanos_posters_218 |
Title |
LHON Genealogy Project - Identifying, Informing and Educating Maternal Relatives |
Creator |
Lissa Poincenot |
Affiliation |
LHON Project at UMDF, San Diego, CA |
Subject |
Genetic Disease; Optic Neuropathy |
Description |
LHON patients often wish to know if any of their maternal ancestors had vision loss, and would like to inform living maternal relatives about LHON. However, they lack the knowledge of how to conduct a genealogical search, as well as how to communicate this sensitive genetic information. The patient advocacy group LHON Project at UMDF created the LHON Genealogy Project to fill that knowledge gap. |
Date |
2017 |
Language |
eng |
Format |
application/pdf |
Type |
Text |
Source |
2017 North American Neuro-Ophthalmology Society Annual Meeting |
Relation is Part of |
NANOS 2017: Poster Presentations |
Collection |
Neuro-Ophthalmology Virtual Education Library: NANOS Annual Meeting Collection: https://novel.utah.edu/collection/nanos-annual-meeting-collection/ |
Publisher |
North American Neuro-Ophthalmology Society |
Holding Institution |
Spencer S. Eccles Health Sciences Library, University of Utah |
Rights Management |
Copyright 2013. For further information regarding the rights to this collection, please visit: https://NOVEL.utah.edu/about/copyright |
ARK |
ark:/87278/s6v44p9g |
Setname |
ehsl_novel_nam |
ID |
1272920 |
Reference URL |
https://collections.lib.utah.edu/ark:/87278/s6v44p9g |